I once read that infertility is the mirror image of mourning. One starts with a death, the other ends with a birth. For many woman the infertility never ends and the mourning continues on. Sometimes what is said or done can affect an infertile woman's mood at the drop of a dime. (I hate bringing it back up again but...) The joke that went across facebook became the straw in the infertile woman's cap and triggered several of us to stand up for our feelings and the insensitivity's of society. Today's blog hopefully will help those interested in being of greater support for those dealing with infertility in their lives.
Let's start off by looking at the numbers. 1 in 6 couples struggle with infertility. Even though when a baby girl is born she is born with a million eggs, by puberty she has already dwindled down to only 300,000 eggs. From this, only around 300 eggs will mature and release through ovulation. A woman's chances getting pregnant then also decrease with age. A slow fertility decline starts in our 20's and rapidly declines by the time we hit our 40's. A healthy 30 year old woman (and note the term healthy...) who is trying to conceive has only a 20% chance of getting pregnant each month. By age 40 that number has shrunk to 5%. Likewise, the rate of miscarriage also is higher if a woman is her 30's as well as the chance of a child being born with an abnormality. Likewise, 4 to10% of women, like myself, suffer from Poly Cystic Ovarian Syndrome (PCOS). I don't know about you, but every time I read a new fertility statistic, my biological clock dings louder than Big Ben through a microphone!
As well as the lower possibility of getting pregnant naturally, even forms of assisted reproductive technology (ART) are affected by age. According to the CDC, in 2009, the ART cycles that lead to live births was only 41% for women under the age of 35, 32% for women ages 35-27, 22% for women ages 38-40, 12% for women aged 41-42, and only 5% for women aged 43-44. And that's with someone scientifically assisting the process! Of the 148,055 cycles of ART performed in the US in 2008, only 46,326 produced live births. This is only a 31% success rate.
Some women, due to their religions can not even consider forms of ART. The Catholic Church, which is the religion I was brought up in, believes that ART goes against the teachings of Christ and the church. Strong staunch Catholics (like my husband) then are left without ART as an option and this reduces the likelihood that we would be able to have a natural child of our own even more.
How do I help? This was a question raised by a friend of mine as I started writing this blog and after the aftermath of the Facebook joke. That sentence was like having someone hold my hand through a horrible procedure. The comfort it provided holds me strong to this day. So the question is, what can you do or say to help? First off, an infertile woman, like myself, deals with various hormonal levels that we can't control. Something is wrong in our body and we don't know if what is said will trigger a negative or positive response. There are a few things said that will send us off reeling no matter what or how it is said. We will get to those in a minute.
DO: What you can do is offer to go to lunch with your infertile friend, or even a movie (and might I suggest you ask them what movie they want to see as some movies will trigger an episode of tears if it deals with children, etc.). Do offer comfort and say, : "I am praying for you," or " I am sorry about what you are going through. I can't imagine how hard that must be," and "I am here for you." Do offer to listen. Sure, it may seem like we are complaining all the time, but we have good reason. Some of us take medications that cause us horrible side effects with everything occurring from nausea, bloating, and diarrhea to sleepiness, sleeplessness, bruising and major mood swings. Sometimes people want to help but don't know what to say because there are no words that will take the pain truly away that we are going through. Sometimes just saying, "I'm here to listen without judgement or advice as this is something I have never gone through, but I want to support you." Do offer a shoulder to lean on, an ear to listen with and hand to hold. Sometimes these are the most important things we need.
DON'T: Obviously this list will be pretty long. Many of us have been going through this for a long time. This list will almost read like the ABC's. The first area is ADOPTION. Many of us have been dealing with this long enough that we have thought of adoption as an option. Regardless of if we have or not, do not say, "Why don't you just adopt," "You can always adopt," or "Have you thought of adoption?" Adoption is not as easy as everyone thinks it is. The route of adoption can be very expensive and time consuming. If every person who conceived naturally had to go through this route to even keep their own child, many would fail. On the other side of it, many infertile couples want a child of their own flesh and blood. It makes it difficult. As many positive stories or adoption you hear there are just as many horror stories.
Do not baby brag or complain to an infertile woman. What is baby bragging? It's when a pregnant woman brags all over the Internet about her baby bump, or when a mother brags about the next thing her newborn has done. Likewise, don't complain about how difficult it is. An infertile woman who longs to have a child longs to have all the bad and the good. It doesn't mean that you aren't validated for the struggle you are going through, but this is one trigger that I hear most often.
Do not deny a woman dealing with infertility her feelings. Even if they have been able to get pregnant but have had miscarriage after miscarriage, it doesn't mean they can easily get pregnant. They are still considered infertile. Some may have only been able to have one child and never be able to conceive again.
The next "do not" involves God. Do not say to a woman, "God has a different plan for you," "God doesn't want you to have a baby," or "God must be punishing you for something that you did wrong." I highly doubt that women have miscarried or not gotten pregnant because of their choice of faith. When someone speaks in this way I often want to pop back up with the response: "So, when did you become God," or "when did God reveal to you this revelation and ask you to pass it my way." Please don't tell them to do a novena, become a better, Catholic, christian, Lutheran, or whatever religion they are and then maybe God will give them a child. It is probably one of the best way to get an infertile woman going on a rampage. For those of us who believe in God as our higher power, we believe that God is a God of love and not hateful towards us.
Do not say to us, "Just relax and you will get pregnant," "Just lose weight (or gain weight) and you will get pregnant," or tell us the story of another friend or friend of a friend who did these things and got pregnant. Please, don't tell these to us unless we ask for this information. It reminds us of our failures. It also most times isn't an issue of our weight or relaxing. Whatever you do, please don't tell us that we are trying too hard. When we didn't try we were still infertile. It didn't make a difference. And, for many of us, trying involves medications that we must take to even allow our body to function correctly. Without my thyroid medications, my thyroid wouldn't function. The same is with some of the medications that help us to ovulate, produce cervical mucus, or have the normal hormones most healthy women have.
Whatever you do, be there for us. This is only a short list of areas that we see most often and how you can help. Another way to help is to continue encouraging others to read this blog. Because infertility has remained such a tabooed subject and many couples keep it under wraps, some won't come forward and acknowledge to you that they are dealing with this. Education is going to be the big key to changing the way society looks at infertility. For the longest time I thought infertility was something that only I knew and felt. When I began to educate myself to everything out there with regards to treatments, etc. I was opened to a whole new world. I realized I wasn't alone. We are here now offering all you out there the opportunity to join us in the place that only we knew for so long. Help us make a difference. Help us educate the world. And most of all, just be there for us.